Thursday, November 3, 2011
NHS Greater Glasgow and Clyde Health Board refuse to prescribe the ‘Miracle drug’ Eculizumab to Joyce Juszczak, corrupt Scotland at its best?
By now, you will have noticed how corrupt Scotland has become.
The case of Joyce Juszczak is a very good example of this as it highlights in detail the workings of NHS Greater Glasgow and Clyde (NHSGGC).
As Scotland wants to move towards an independent future Joyce Juszczak will be one of the forgotten victims.
She is going to be allowed to die a horrible painful death by those in authority.
It is a death sentence in a land that doesn’t allow capital punishment.
Her only hope lies with English people, if Joyce moves to England, then she can get the “miracle” drug eculizumab for paroxysmal nocturnal haemoglobinuria (PNH).
If she stays in Scotland, it is a slow painful death, is anyone going to do the right thing?
Not it appears in this country, she isn’t socially connected, her face doesn’t fit; she is working class.
She is working class denied a chance to live by a middle class run NHS Greater Glasgow and Clyde (NHSGGC).
‘Oh flower of Scotland, when will we see your like again’.
Joyce has a rare and potentially deadly condition which destroys red blood cells and leaves victims at risk of kidney failure and potentially fatal blood clots.
Red blood cells carry oxygen around the body. The more of these cells destroyed the harder it is to move and to breathe properly.
Experts say eculizumab is a potentially life-saving drug that prevents the need for regular blood transfusions in two-thirds of patients and virtually abolishing the risk of clotting.
And she isn’t getting it.
Specialists handling Mrs Juszczak’s case have said she should be receiving the treatment.
Her symptoms are now more advanced, the need is more desperate, however, the board, which had previously turned her down, is refusing to budge.
So, the Scottish Government should sack these bastards immediately.
Ms Hardie, Joyce Juszczak said:
“NHSGGC has issued a death sentence on my mum. We are completely devastated with the news”.
“We could not believe it had the insensitivity of comparing my mum’s life-saving drug with the equivalent of 10 nursing jobs, and to clearly state our case would not be considered unless my mum has a thrombosis or her blood count falls dangerously low.”
Health isn’t a numbers game.
What use is having a devolved health service, if we can help Joyce Juszczak?
Why are we letting her die?
To save £250,000 a year!
What a great pity that the only solution for Joyce Juszczak is to move to England so that the English can save her life.
If she remains in Scotland, it appears no one is going to help her.
The Campaign for Human Rights at Glasgow University